I think there's a line. Do you see a line?" We stared
at the pregnancy test and decided there was indeed a
line and we were pregnant for the sixth time. The five
pregnancies before had sadly ended in miscarriages. It
was a mixture of excitement and anxiety for both of us.
months into the pregnancy we found out that the baby was
a boy and he had a chromosome disorder called trisomy
18. To learn more about trisomy 18 click
but in a nutshell the baby has three copies of the
number 18 chromosome and there should only be two.
Babies who make it to be born with the disorder are
severely mentally retarded, have many problems with
other organs (usually the heart) and most die before
they are a year old. The doctors offered to terminate
the pregnancy but that was not an option for us. We
were in love with the little guy and he was alive and
well at the time. We decided to name him Evan Paul
Leland Rausch. Evan means warrior and his middle names
are his grandfathers' first names.
was born via C-section on December 6, 2004 at 1:06pm.
He weighed in at a hefty 4 pounds and 1 ounce and was
17 inches long. He was tiny but perfect in our eyes.
It was pretty rough going at first since he was a month
premature. His lungs weren't quite ready and he had
some breathing problems. On December 7th he was
transported to Children's Medical Center where we spent
the next 45 days. Our families even came to the hospital
for Christmas. We lived at the
Ronald McDonald House
across from the hospital the whole time. Thank God for
that! We could stay close to Evan and get some much
needed sleep and a meal once in a while.
came home on January 21, 2005. Evan has some health
issues but he's on medicines to control most of them kamagra uk.
Being home with him is challenging without the NICU
staff there 24/7 but we're enjoying it! We didn't know
if we would be able to bring him home at all and thank
God every day that we could.
take a few minutes to look at
Evan's pictures. He's our
little miracle baby and we're awfully proud of him!